Skype call for European volunteers

All volunteers will meet again online next week Sunday, October 2nd, 20:00h (CET). On the agenda are general plans to find more patients in the EU, stimulating research and the first patient conference 11-13 November. We are still open for new volunteers from several countries in the EU. Are you interested to join us or help us finish our plans? Please let us know through

Extra for volunteers of the LGD Alliance Europe: on November 11th, we have a special program for volunteers (including new ones). Don’t hesitate to join our team!

PS: the original meeting was planned for September 25th. This meeting is postponed to October 2nd.