Research is necessary to know what is causing Complex Lymphatic Anomalies and find effective therapies.
Most publications are case reports, because there are not so many with this rare disease. An overview of publications and reports can be found at www.lgdalliance.org.
International LGDA Registry
When you register as a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham’s disease to find a treatment and a cure.
European cooperation through the VASCERN
VASCERN is one of the 24 European Reference Networks (ERNs) on rare diseases. The LGD Alliance Europe has joined the VASCERN as well. VASCERN gathers expert teams from specialized multidisciplinary Healthcare providers (HCPs), coming from many of the EU Member States.
Lymphatic Malformation Institute
The Lymphatic Malformation Institute (LMI) is a nonprofit organization whose mission is to improve the clinical care of patients with Rare and Complex Lymphatic Anomalies. LMI funds research focused on identifying effective therapies for treating these rare disorders of the lymphatic system.