New Video Presenting VASCERN released
This video presents VASCERN, its members and the work that the network does to improve the lives of patients with rare vascular diseases. Subtitles now available
This video presents VASCERN, its members and the work that the network does to improve the lives of patients with rare vascular diseases. Subtitles now available
A team of researchers, including our ‘own’ Michael Dellinger, Juan Carlos López-Guttiérrez and Victor Martínez-Glez, have published this outstanding article on GLA, formerly known as
Francesca “FORZA FRANCY” D’Agostino and basketball team Scandone donated 1500 euro’s to the LGD Alliance Europe for support, education and research on Generalized Lymphatic Anomaly
The LGDA and partner, the Lymphatic Malformation Institute (LMI), are pleased to announce the selection for research awards for the coming year for the study
Due to the success of two previous expert clinics organized by Dr. Lopez-Gutierrez at La Paz Hospital in Madrid (Spain), more clinic dates have been
Lucia Nanetti from Italy has a son with lymphangiomatosis. She wrote the following: “According to her (the Lymphangiomatosis) you could not do sport, run, tire
Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people
Tracy Milne and her son Alfie share their story on facing the challenges of living with lymphangiomatosis head on (page 58). Later in the article
RUDY Study UK For anyone that received an invitation to join this study through the LGDA registry but haven’t quite got round to signing up,
A sequencing panel for lymphangiomatosis samples arrived today at GOSH, and the experiment will be running soon. This takes a bit of time to run
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LGD Alliance Europe is a registered charity (ANBI) in the Netherlands.
Foundation registration: 63159333
RSIN or tax nummer: 855117540