United Kingdom

After much consideration the LGDA UK Board of Trustees made the hard decision to dissolve as a registered UK charity.  

The LGDA UK formerly known as the Alfie Milne Lymphangiomatosis Trust, was established in 2012 by parents, Tracy and Mark Milne, after their son, Alfie, was diagnosed with lymphangiomatosis in 2008.  After 10 years of dedicated fundraising the charity successfully raised over £325,000 to fund vital research and to support families affected by complex lymphatic anomalies. 

The LGDA UK is very proud of their achievements having supported research and patient support efforts around the world, in collaboration with their sister organisations, the LGDA and LGD Alliance Europe. 

What happens now?  Where do I go for support and information?

If you are in the UK and have been diagnosed with a complex lymphatic anomaly or you are a family member or friend looking for support and information you can reach a Support Team Member by completing our online contact form. 

I live in the UK how can I support the LGDA?

As from July 2022 the LGDA UK no longer operates a bank account so any donations can be made through the LGD Alliance Europe website. 

Are there any specialists in the UK? 

Yes!  There are two specialist centres in the the UK, one for paediatrics at Great Ormond Street Hospital and a newly opened clinic at Guy’s and St Thomas’ .  

• Cutaneous Mosaicism Service – Great Ormond Street Hospital (GOSH), London
• Adult Mosaic Disorders Clinic – Guy’s and St Thomas’ Hospital, London

Thank you

The LGDA UK would like to take this opportunity to thank patients, families and friends for their support over the last 10 years.  Together we have made a difference.

Annual Report and Financial Overview

Annual Report and Financial Overview 2021-2022

Annual Report and Financial Overview 2020-2021