Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity and access to diagnosis and therapies for people living with a rare disease.

An introduction to complex lymphatic anomalies.  A guide for patients and families (January 2023 Version)- download your copy here.

Hello! My name is David Williams. I have been appointed as the Chair of the Board.   I am British, with a Welsh name, but