Million Dollar Bike Ride 2023
Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –
Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –
Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity and access to diagnosis and therapies for people living with a rare disease.
An introduction to complex lymphatic anomalies. A guide for patients and families (January 2023 Version)- download your copy here.
Hello! My name is David Williams. I have been appointed as the Chair of the Board. I am British, with a Welsh name, but
Our 2021 Annual Report is out now. It highlights our accomplishments and new projects that further our mission. Read it here. Annual Report 2021
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.
Our communications team is looking for new volunteers Are you the person we are looking for? Do you have any expertise (or interest) in one
Sluit je aan bij ons goede doel en steun ons. Help ons de patiëntengemeenschap van zeldzame lymfatische aandoeningen in Europa te ondersteunen. Vandaag en in
Wij zijn zeer verheugd met een gloednieuwe publicatie: het VASCA Magazine! Een samenwerkingsverband van vijf patiëntenorganisaties in Europa die patiënten met zeldzame vasculaire anomalieën vertegenwoordigen.
Meld u aan voor onze nieuwsbrief en ontvang nieuws en andere belangrijke informatie.
Wij gebruiken geen postadres of telefoonnummer. Gebruik de contactpagina om contact met ons op te nemen.
LGD Alliance Europe is goed doel dat in Nederland is geregistreerd (ANBI).
KvK-nummer van de stichting: 63159333
RSIN of fiscaal nummer: 855117540