Emily’s Story
“Emily is my strength, my hero, and my Warrior!” Written by Kayleigh, Supporter, United Kingdom “Emily is my strength, my hero, and my Warrior!” Updated
2024 MDBR T-shirt Design Contest
Unleash Your Creativity for a Cause: Join the MDBR T-shirt Design Contest! Introduction: Calling all artists, young and old, to pick up their tools and
Join the Global Campaign for Life: Rare Disease Day
Rare Disease Day serves as a pivotal occasion that mobilizes global endeavours to increase awareness and advocate for individuals affected by rare diseases. This year,
Embark on the Journey of Awareness: EURORDIS Photo Award 2024
Celebrating the Grit and Strength of the Rare Disease Community We are thrilled to extend a special invitation from EURORDIS-Rare Diseases Europe, an extraordinary non-profit
CLA Community News – November 2023
The Gift of Hope and Paving Pathways Dear Community Members, As we reflect on the past year, we feel an overwhelming sense of pride for
Unlocking Hope: Guy’s and St Thomas’ Hospital Introduces Mosaic Disorders Clinic for Adults
We are excited to announce that Guy’s and St Thomas’ Hospital in London has unveiled a beacon of hope for adults affected by complex lymphatic