VASCA Magazine for patients and medical professionals
We are very pleased to introduce a brand new publication: the VASCA Magazine! A co-operation of five patient organisation in Europe representing patients with rare vascular anomalies. Download the PDF
Investigation of complications of sirolimus use
Sirolimus has been used in a number of studies as an experimental drug for the treatment of vascular malformations. Especially for patients with lymphatic and
Vaccination advice COVID-19
The VASCERN Vascular Anomalies (VASCA) Working Group has formulated a statement concerning SARS-CoV-2 vaccination for patients with vascular malformations General statement: Follow the national safety
Corona virus, information for patients
The VASCERN (European Reference Network on Rare Multisystemic Vascular Diseases, specifically the VASCA working group) wrote a statement on Covid-10, initated by patient advocacy groups
Dissecting the Mechanism of Bone Loss in Gorham-Stout Disease
Gorham-Stout disease (GSD) is characterized by progressive bone destruction and proliferation of lymphatic vessels. In 2016, Andrea Del Fattore, PhD, and Andrea Bartuli, MD, and their
A somatic activating NRAS variant associated with kaposiform lymphangiomatosis
Barclay et al published an article in the Journal Genetics in Medicine and we got permission from the author to share a link on our