Newsletter June 2022
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.
WE NEED YOU!
Our communications team is looking for new volunteers Are you the person we are looking for? Do you have any expertise (or interest) in one
We search our first 100 members!
Join our cause and support us. Help us to continue supporting the patient’s community of rare lymphatic diseases in Europe. Today and in the future.
VASCA Magazine for patients and medical professionals
We are very pleased to introduce a brand new publication: the VASCA Magazine! A co-operation of five patient organisation in Europe representing patients with rare vascular anomalies. Download the PDF
Investigation of complications of sirolimus use
Sirolimus has been used in a number of studies as an experimental drug for the treatment of vascular malformations. Especially for patients with lymphatic and
Vaccination advice COVID-19
The VASCERN Vascular Anomalies (VASCA) Working Group has formulated a statement concerning SARS-CoV-2 vaccination for patients with vascular malformations General statement: Follow the national safety