We are proud share that we work together with a number of national and international patient organisations.
EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 962 rare disease patient organisations from 73 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. Read more
CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from CMTC (‘Van Lohuizen syndrome’) and other vascular abnormalities, and stimulate scientific research into these disorders. Read more