LGD Awareness Day is an opportunity to raise awareness of complex lymphatic anomalies (CLAs). To help connect patients and their families to peers, networks of care, partner to advance new research, and educate the medical community to help all people navigating CLAs have hope for a healthier tomorrow.
Jana Sheets, (May 26th 1974 to Jan 6th 2010) founded the LGDA in 2007. She died just 3 years later of complications of lymphangiomatosis (known as generalized lymphatic anomaly (GLA)).
For more than twenty years, Jana never new another person with a CLA. Through the Alliance she started to find others. Spending the last few years of her life building a community that continues to grown and carry on her work. Read more about Jana’s story.
LGD Awareness Day is an opportunity to raise awareness of CLAs to help connect patients and their families to peers, networks of care, partner to advance new research, educate the medical community to help all people navigating CLAs have hope for a healthier tomorrow.
This year we asked our community to share what it means to live with a CLA or care for someone with a CLA……..
