Without patient participation, research cannot be done


For anyone that received an invitation to join this study through the LGDA registry but haven’t quite got round to signing up, please take five minutes to listen to an interview with Dr. Kassim Javaid talking about what the Rudy Study is and why it is important for patients to get involved. Contact Tracy at Alfie’s Trust or the Rudy Study direct if you have any questions.

Watch this video to learn why research is important in rare disease, what stops some people from taking part in research and what researchers in the RUDY study are doing to help people take part.