News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day. 

Join our cause and support us. Help us to continue supporting the patient’s community of rare lymphatic diseases in Europe. Today and in the future.

Siamo molto lieti di presentare una nuova pubblicazione: il VASCA Magazine! Una cooperazione fra cinque organizzazioni di pazienti in Europa che rappresentano pazienti con anomalie

Il gruppo di lavoro VASCERN Anomalie Vascolari (VASCA) ha emesso un comunicato riguardante la vaccinazione SARS-CoV-2 per i pazienti con malformazioni vascolari Dichiarazione generale: Seguire

Sirolimus has been used in a number of studies as an experimental drug for the treatment of vascular malformations. Especially for patients with lymphatic and

The VASCERN (European Reference Network on Rare Multisystemic Vascular Diseases, specifically the VASCA working group) wrote a statement on Covid-10, initated by patient advocacy groups

Barclay et al published an article in the Journal Genetics in Medicine and we got permission from the author to share a link on our

As the advocacy organization for the rare vascular anomalies of GLA/lymphangiomatosis, GSD, and KLA, the LGDA is aware of the lack of resources for adults