Notizie

News

Million Dollar Bike Ride 2023

Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –

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Newsletter February 2023

Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult

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Annual Report 2021

Our 2021 Annual Report is out now. It highlights our accomplishments and new projects that further our mission. Read it here. Annual Report 2021

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News

Newsletter June 2022

News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day. 

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New volunteer
News

WE NEED YOU!

Our communications team is looking for new volunteers Are you the person we are looking for? Do you have any expertise (or interest) in one

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