Million Dollar Bike Ride 2023
Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –
Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –
Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity and access to diagnosis and therapies for people living with a rare disease.
An introduction to complex lymphatic anomalies. A guide for patients and families (January 2023 Version)- download your copy here.
Hello! My name is David Williams. I have been appointed as the Chair of the Board. I am British, with a Welsh name, but
Our 2021 Annual Report is out now. It highlights our accomplishments and new projects that further our mission. Read it here. Annual Report 2021
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.
Our communications team is looking for new volunteers Are you the person we are looking for? Do you have any expertise (or interest) in one
Join our cause and support us. Help us to continue supporting the patient’s community of rare lymphatic diseases in Europe. Today and in the future.
Siamo molto lieti di presentare una nuova pubblicazione: il VASCA Magazine! Una cooperazione fra cinque organizzazioni di pazienti in Europa che rappresentano pazienti con anomalie
Iscriviti alla nostra newsletter per ricevere notizie e altre informazioni importanti.
Non usiamo un indirizzo postale o un numero di telefono. Usate la pagina dei contatti per mettervi in contatto con noi.
LGD Alliance Europe è un ente di beneficenza registrato (ANBI) nei Paesi Bassi.
Registrazione della Fondazione: 63159333
RSIN o codice fiscale: 855117540