We hope this message finds you well and thriving. As we step into a new year, we’re thrilled to announce some exciting changes to our
This document is based on the statement elaborated by ASPHO SIG (The American Society of Pediatric Hematology/Oncology Special Interest Group) and CaNVAS (Consortium of iNvestigators of Vascular
“Emily is my strength, my hero, and my Warrior!” Written by Kayleigh, Supporter, United Kingdom “Emily is my strength, my hero, and my Warrior!” Updated
Unleash Your Creativity for a Cause: Join the MDBR T-shirt Design Contest! Introduction: Calling all artists, young and old, to pick up their tools and
Rare Disease Day serves as a pivotal occasion that mobilizes global endeavours to increase awareness and advocate for individuals affected by rare diseases. This year,
Celebrating the Grit and Strength of the Rare Disease Community We are thrilled to extend a special invitation from EURORDIS-Rare Diseases Europe, an extraordinary non-profit
The Gift of Hope and Paving Pathways Dear Community Members, As we reflect on the past year, we feel an overwhelming sense of pride for
We are excited to announce that Guy’s and St Thomas’ Hospital in London has unveiled a beacon of hope for adults affected by complex lymphatic
From Left, Renè Haegerling (BIH Center for Regenerative Therapies and the Institute of Medical and Human Genetics at Charité – Universitätsmedizin Berlin.), Professor Miika Vikkula
Register Now! Join our insightful webinar series focused on empowering patients and their families with valuable knowledge and self-help techniques to address mental health issues
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LGD Alliance Europe è un ente di beneficenza registrato (ANBI) nei Paesi Bassi.
Registrazione della Fondazione: 63159333
RSIN o codice fiscale: 855117540
