Join or support our patient community
– I’m a patient: Because there are not many patients with a rare lymphatic anomaly, it’s important to join as member of our community. Patients help each other with a listening ear and by sharing experiences.
Patients can help medical scientists all over the world. You can support scientific studies into Complex Lymphatic Anomalies, like Gorham’s Disease or Central Conducting Lymphatic Anomaly. Become a LGDA EU Supporter today!
– I support a patient: You can also join the LGD Alliance Europe if you are a friend, relative or colleague of a patient. We will inform you about educational events, scientific developments and funding opportunities. You can also elect to give an extra donation to support patients who are not able to pay the minimum donation amount to become a ‘Supporter’. Read more…
– Share your story: You can raise more awareness by sharing your story online, in our closed online forum, in our newsletter or on our website. Read more…
– I don’t have enough money… If you are a patient and not have the financial means to become a ‘LGDA EU Supporter’, you can simply email us for details. Read more…
Why support us financially?
Support us and our work – now and in the future. We finance research initiatives in Europe and globally. Initiatives to improve the lives of patients with better therapies and medication, but also initiatives which will extend our knowledge of rare and complex lymphatic anomalies. Joining us will keep you up-to-date via our quarterly newsletter. Become a ‘Supporter’ today!
‘LGDA EU Supporter’: You can support us with an annual donation of a minimum of at least 26 euro. Read more…
Donate once: You can also support us with a single donation. Read more…
Volunteer with us
Volunteer:The LGD Alliance Europe consists of volunteers who are actively involved in our organisation from their relation to a patient, their profession or interest. We have many roles within our organization where the intention is that everyone has fun in his / her work and the tasks suit the person. Read More…
Organise a Fundraiser: Selling cookies, racing cars or swim all night: every fundraiser that will raise money and awareness for Rare Lymphatic Anomalies, is great! Read more…
Join our scientific network
– Join as doctor, medical specialist or vascular researcher: Research is necessary to know what is causing Complex Lymphatic Anomalies and find effective therapies. Most publications are case reports, because there are not so many with this rare disease.
Together with you, medical professionals and vascular researchers, we formulate the relevant clinical and scientific ambitions, co-create proposals for research and find the necessary funds. Join our network to make a difference together.