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  • home
  • Rare and Complex Lymphatic Anomalies
    • What is a Lymphatic Anomaly?
    • – Gorham Stout Disease
    • – Generalized Lymphatic Anomaly
    • – Central Conducting Lymphatic Anomaly
    • – Kaposiform Lymphangiomatosis
    • Diagnosis and Treatment
  • Research
    • Finding cause and therapies
    • Register As A Patient
    • VASCERN
  • For patients and family
    • Support for patients and family
    • Ask our support
    • Share Your Story
    • 26 May – LGD Awareness Day
  • Warriors
    • Reaching for a cure
  • Get involved
    • How you can join or help
    • Become a member today!
    • Information for members
    • Single donations
    • Become A Volunteer
    • Organise A Fundraiser
    • Shop And Donate
  • Organisation
    • About LGDA Europe
    • – United Kingdom
    • – Nederland
    • – Belgium
    • Other European partners
  • home
  • Rare and Complex Lymphatic Anomalies
    • What is a Lymphatic Anomaly?
    • – Gorham Stout Disease
    • – Generalized Lymphatic Anomaly
    • – Central Conducting Lymphatic Anomaly
    • – Kaposiform Lymphangiomatosis
    • Diagnosis and Treatment
  • Research
    • Finding cause and therapies
    • Register As A Patient
    • VASCERN
  • For patients and family
    • Support for patients and family
    • Ask our support
    • Share Your Story
    • 26 May – LGD Awareness Day
  • Warriors
    • Reaching for a cure
  • Get involved
    • How you can join or help
    • Become a member today!
    • Information for members
    • Single donations
    • Become A Volunteer
    • Organise A Fundraiser
    • Shop And Donate
  • Organisation
    • About LGDA Europe
    • – United Kingdom
    • – Nederland
    • – Belgium
    • Other European partners

Home

Support, Educate, Give Hope!

Help us to continue supporting the patient's community of rare lymphatic diseases in Europe.
Join us as a patient, doctor, volunteer or donor!
Become a 'LGDA EU Supporter' today!
Join or support our patient community
Donate
Volunteer with us or raise money
Join our scientific network
Join or support our patient community

Join or support our patient community


– I’m a patient: Because there are not many patients with a rare lymphatic anomaly, it’s important to join as member of our community. Patients help each other with a listening ear and by sharing experiences.

Patients can help medical scientists all over the world. You can support scientific studies into Complex Lymphatic Anomalies, like Gorham’s Disease or Central Conducting Lymphatic Anomaly. Become a LGDA EU Supporter today!

– I support a patient: You can also join the LGD Alliance Europe if you are a friend, relative or colleague of a patient. We will inform you about educational events, scientific developments and funding opportunities. You can also elect to give an extra donation to support patients who are not able to pay the minimum donation amount to become a ‘Supporter’. Read more…

– Share your story: You can raise more awareness by sharing your story online, in our closed online forum, in our newsletter or on our website. Read more…

– I don’t have enough money…  If you are a patient and not have the financial means to become a ‘LGDA EU Supporter’, you can simply email us for details. Read more…

Donate

Why support us financially?
Support us and our work – now and in the future. We finance research initiatives in Europe and globally. Initiatives to improve the lives of patients with better therapies and medication, but also initiatives which will extend our knowledge of rare and complex lymphatic anomalies. Joining us will keep you up-to-date via our quarterly newsletter. Become a ‘Supporter’ today!

‘LGDA EU Supporter’: You can support us with an annual donation of a minimum of at least 26 euro. Read more…

Donate once: You can also support us with a single donation. Read more…

Volunteer with us or raise money

Volunteer with us

Volunteer:The LGD Alliance Europe consists of volunteers who are actively involved in our organisation from their relation to a patient, their profession or interest. We have many roles within our organization where the intention is that everyone has fun in his / her work and the tasks suit the person. Read More…

Organise a Fundraiser: Selling cookies, racing cars or swim all night: every fundraiser that will raise money and awareness for Rare Lymphatic Anomalies, is great! Read more…

Join our scientific network

Join our scientific network

– Join as doctor, medical specialist or vascular researcher: Research is necessary to know what is causing Complex Lymphatic Anomalies and find effective therapies. Most publications are case reports, because there are not so many with this rare disease.

Together with you, medical professionals and vascular researchers, we formulate the relevant clinical and scientific ambitions,  co-create proposals for research and find the necessary funds. Join our network to make a difference together.

Become a 'LGDA EU Supporter'

Join our newsletter

Sign up for our newsletter and receive news and other important information.

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Contact

We don’t use a postal address or telephone number. Please use the contact page to get in touch with us.

Registered charity

LGD Alliance Europe is a registered charity (ANBI) in the Netherlands.

Foundation registration: 63159333
RSIN or tax nummer: 855117540

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  • home
  • Rare and Complex Lymphatic Anomalies
    • What is a Lymphatic Anomaly?
    • – Gorham Stout Disease
    • – Generalized Lymphatic Anomaly
    • – Central Conducting Lymphatic Anomaly
    • – Kaposiform Lymphangiomatosis
    • Diagnosis and Treatment
  • Research
    • Finding cause and therapies
    • Register As A Patient
    • VASCERN
  • For patients and family
    • Support for patients and family
    • Ask our support
    • Share Your Story
    • 26 May – LGD Awareness Day
  • Warriors
    • Reaching for a cure
  • Get involved
    • How you can join or help
    • Become a member today!
    • Information for members
    • Single donations
    • Become A Volunteer
    • Organise A Fundraiser
    • Shop And Donate
  • Organisation
    • About LGDA Europe
    • – United Kingdom
    • – Nederland
    • – Belgium
    • Other European partners
  • home
  • Rare and Complex Lymphatic Anomalies
    • What is a Lymphatic Anomaly?
    • – Gorham Stout Disease
    • – Generalized Lymphatic Anomaly
    • – Central Conducting Lymphatic Anomaly
    • – Kaposiform Lymphangiomatosis
    • Diagnosis and Treatment
  • Research
    • Finding cause and therapies
    • Register As A Patient
    • VASCERN
  • For patients and family
    • Support for patients and family
    • Ask our support
    • Share Your Story
    • 26 May – LGD Awareness Day
  • Warriors
    • Reaching for a cure
  • Get involved
    • How you can join or help
    • Become a member today!
    • Information for members
    • Single donations
    • Become A Volunteer
    • Organise A Fundraiser
    • Shop And Donate
  • Organisation
    • About LGDA Europe
    • – United Kingdom
    • – Nederland
    • – Belgium
    • Other European partners
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