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Emily’s Story
« Emily is my strength, my hero, and my Warrior! » Written by Kayleigh, Supporter, United Kingdom « Emily is my strength, my hero, and my Warrior! » Updated
Tracy Milne
28 février 2024
« Emily is my strength, my hero, and my Warrior! » Written by Kayleigh, Supporter, United Kingdom « Emily is my strength, my hero, and my Warrior! » Updated
Rare Disease Day serves as a pivotal occasion that mobilizes global endeavours to increase awareness and advocate for individuals affected by rare diseases. This year,
From Left, Renè Haegerling (BIH Center for Regenerative Therapies and the Institute of Medical and Human Genetics at Charité – Universitätsmedizin Berlin.), Professor Miika Vikkula
Register Now! Join our insightful webinar series focused on empowering patients and their families with valuable knowledge and self-help techniques to address mental health issues
The International Scientific Conference on Complex Lymphatic Anomalies brings together leaders in the field to discuss the latest research on CLAs. It will also foster
LGD Awareness Day is an opportunity to raise awareness of complex lymphatic anomalies (CLAs). To help connect patients and their families to peers, networks of
Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity and access to diagnosis and therapies for people living with a rare disease.
An introduction to complex lymphatic anomalies. A guide for patients and families (January 2023 Version)- download your copy here.
Hello! My name is David Williams. I have been appointed as the Chair of the Board. I am British, with a Welsh name, but
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LGD Alliance Europe est une organisation caritative enregistrée (ANBI) aux Pays-Bas.
Enregistrement de la fondation : 63159333
RSIN ou numéro d’identification fiscale : 855117540
