This video explains European Reference Networks. One of those ERN’s is VASCERN. Ange van der Velden from the LGDA Europe participates as a patient representative
May 26 2017 LGDA Europe and our American partner LGDA are pleased to announce the establishment of an official Worldwide Awareness Day of May 26.
Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are
Imagine if the best specialists from across Europe could join their efforts to tackle complex or rare medical conditions that require highly specialised healthcare and
A little less than a month ago the LGDA Europe held its first meeting in Leusden, the Netherlands. A total of 11 patients and 31
All volunteers will meet again online next week Sunday, October 2nd, 20:00h (CET). On the agenda are general plans to find more patients in the
We are proud to announce our first European patient meeting will be in November 11-13 in Leusden, Netherlands. A unique moment for patients in Europe
Dutch hero Lazlo shared his story in 2012 on Dutch TV. Now he shares it with the world in the hope to reach out to
In February this year, Alfie’s Trust funded a 6 week Fellowship to allow Maria Gnarra to join the Dermatology Department at Great Ormond Street Hospital to
Abonnez-vous à notre lettre d’informations et recevez des actualités et d’autres informations importantes.
Nous n’utilisons pas d’adresse postale ni de numéro de téléphone. Veuillez vous rendre sur la page Contact pour nous envoyer un message.
LGD Alliance Europe est une organisation caritative enregistrée (ANBI) aux Pays-Bas.
Enregistrement de la fondation : 63159333
RSIN ou numéro d’identification fiscale : 855117540