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Video explains ERN’s

This video explains European Reference Networks. One of those ERN’s is VASCERN. Ange van der Velden from the LGDA Europe participates as a patient representative

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LGDA Awareness Day

May 26 2017 LGDA Europe and our American partner LGDA are pleased to announce the establishment of an official Worldwide Awareness Day of May 26.

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Fellowship Maria Gnarra

In February this year, Alfie’s Trust funded a 6 week Fellowship to allow Maria Gnarra to join the Dermatology Department at Great Ormond Street Hospital to

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