Mental Health Series

Register Now!  Join our insightful webinar series focused on empowering patients and their families with valuable knowledge and self-help techniques to address mental health issues

Lire la suite

Million Dollar Bike Ride 2023

Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –

Lire la suite

Newsletter February 2023

Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult

Lire la suite