GOSH-UCL CLA Research Update 2024
Our dedicated UCL-GOS CLA Research team is based at the UCL GOS Institute of Child Health led by Dr Maanasa Polubothu. We work with top
Our dedicated UCL-GOS CLA Research team is based at the UCL GOS Institute of Child Health led by Dr Maanasa Polubothu. We work with top
Introducing VASCA Magazine: Your Source for Vascular Anomaly Knowledge and Empowerment In 2020, an inspiring idea took root: the creation of the first patient organization-based
LGD Alliance Gears Up for Million Dollar Bike Ride to Support CLA Research As the LGDA prepares for the annual Million Dollar Bike Ride (MDBR)
We hope this message finds you well and thriving. As we step into a new year, we’re thrilled to announce some exciting changes to our
This document is based on the statement elaborated by ASPHO SIG (The American Society of Pediatric Hematology/Oncology Special Interest Group) and CaNVAS (Consortium of iNvestigators of Vascular
« Emily is my strength, my hero, and my Warrior! » Written by Kayleigh, Supporter, United Kingdom « Emily is my strength, my hero, and my Warrior! » Updated
Unleash Your Creativity for a Cause: Join the MDBR T-shirt Design Contest! Introduction: Calling all artists, young and old, to pick up their tools and
Rare Disease Day serves as a pivotal occasion that mobilizes global endeavours to increase awareness and advocate for individuals affected by rare diseases. This year,
Celebrating the Grit and Strength of the Rare Disease Community We are thrilled to extend a special invitation from EURORDIS-Rare Diseases Europe, an extraordinary non-profit
The Gift of Hope and Paving Pathways Dear Community Members, As we reflect on the past year, we feel an overwhelming sense of pride for
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LGD Alliance Europe est une organisation caritative enregistrée (ANBI) aux Pays-Bas.
Enregistrement de la fondation : 63159333
RSIN ou numéro d’identification fiscale : 855117540