Million Dollar Bike Ride 2023
Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –
Tracy Milne
8 mars 2023
Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –
Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity and access to diagnosis and therapies for people living with a rare disease.
An introduction to complex lymphatic anomalies. A guide for patients and families (January 2023 Version)- download your copy here.
Hello! My name is David Williams. I have been appointed as the Chair of the Board. I am British, with a Welsh name, but
Our 2021 Annual Report is out now. It highlights our accomplishments and new projects that further our mission. Read it here. Annual Report 2021
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.
Our communications team is looking for new volunteers Are you the person we are looking for? Do you have any expertise (or interest) in one
Join our cause and support us. Help us to continue supporting the patient’s community of rare lymphatic diseases in Europe. Today and in the future.
We are very pleased to introduce a brand new publication: the VASCA Magazine! A co-operation of five patient organisation in Europe representing patients with rare vascular anomalies. Download the PDF
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Nous n’utilisons pas d’adresse postale ni de numéro de téléphone. Veuillez vous rendre sur la page Contact pour nous envoyer un message.
LGD Alliance Europe est une organisation caritative enregistrée (ANBI) aux Pays-Bas.
Enregistrement de la fondation : 63159333
RSIN ou numéro d’identification fiscale : 855117540