Million Dollar Bike Ride 2023
Support Team CLA Warriors Since 2015, the LGDA have partnered to participate in UPenn Orphan Disease Center’s annual Million Dollar Bike Ride (MDBR) event –
Newsletter February 2023
Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult
Celebrate Rare Disease Day – 28th February 2023
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity and access to diagnosis and therapies for people living with a rare disease.
Understanding Complex Lymphatic Anomalies
An introduction to complex lymphatic anomalies. A guide for patients and families (January 2023 Version)- download your copy here.
New Executive Director – David Williams
Hello! My name is David Williams. I have been appointed as the Chair of the Board. I am British, with a Welsh name, but
Annual Report 2021
Our 2021 Annual Report is out now. It highlights our accomplishments and new projects that further our mission. Read it here. Annual Report 2021