Celebrate Rare Disease Day – 28th February 2023
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity and access to diagnosis and therapies for people living with a rare disease.
Understanding Complex Lymphatic Anomalies
An introduction to complex lymphatic anomalies. A guide for patients and families (January 2023 Version)- download your copy here.
New Executive Director – David Williams
Hello! My name is David Williams. I have been appointed as the Chair of the Board. I am British, with a Welsh name, but
Annual Report 2021
Our 2021 Annual Report is out now. It highlights our accomplishments and new projects that further our mission. Read it here. Annual Report 2021

Newsletter June 2022
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.

WE NEED YOU!
Our communications team is looking for new volunteers Are you the person we are looking for? Do you have any expertise (or interest) in one