Tracy Milne and her son Alfie share their story on facing the challenges of living with lymphangiomatosis head on (page 58). Later in the article

A sequencing panel for lymphangiomatosis samples arrived today at GOSH, and the experiment will be running soon. This takes a bit of time to run

This video explains European Reference Networks. One of those ERN’s is VASCERN. Ange van der Velden from the LGDA Europe participates as a patient representative

May 26 2017 LGDA Europe and our American partner LGDA are pleased to announce the establishment of an official Worldwide Awareness Day of May 26.

Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are

Imagine if the best specialists from across Europe could join their efforts to tackle complex or rare medical conditions that require highly specialised healthcare and

A little less than a month ago the LGDA Europe held its first meeting in Leusden, the Netherlands. A total of 11 patients and 31

All volunteers will meet again online next week Sunday, October 2nd, 20:00h (CET). On the agenda are general plans to find more patients in the

We are proud to announce our first European patient meeting will be in November 11-13 in Leusden, Netherlands. A unique moment for patients in Europe