
Newsletter June 2022
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.
Our communications team is looking for new volunteers Are you the person we are looking for? Do you have any expertise (or interest) in one
Join our cause and support us. Help us to continue supporting the patient’s community of rare lymphatic diseases in Europe. Today and in the future.
El Grupo de Trabajo de Anomalías Vasculares del VASCERN (VASCA) ha elaborado un informe sobre la vacunación del SARS-CoV-2 en pacientes con malformaciones vasculares. Información
Un equipo de investigadores, entre los que se encuentra «nuestro propio» Michael Dellinger, Juan Carlos López-Guttiérrez y Victor Martínez-González, ha publicado este destacado artículo sobre
Nos complace presentar una nueva publicación: la revista VASCA. Ella es fruto de la cooperación entre cinco organizaciones de pacientes en Europa, que representan a
Sirolimus has been used in a number of studies as an experimental drug for the treatment of vascular malformations. Especially for patients with lymphatic and
The VASCERN (European Reference Network on Rare Multisystemic Vascular Diseases, specifically the VASCA working group) wrote a statement on Covid-10, initated by patient advocacy groups
Gorham-Stout disease (GSD) is characterized by progressive bone destruction and proliferation of lymphatic vessels. In 2016, Andrea Del Fattore, PhD, and Andrea Bartuli, MD, and their
Barclay et al published an article in the Journal Genetics in Medicine and we got permission from the author to share a link on our
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