Celebrating the Grit and Strength of the Rare Disease Community
We are thrilled to extend a special invitation from EURORDIS-Rare Diseases Europe, an extraordinary non-profit alliance uniting over 1000 patient organizations across 74 countries. Their noble mission? To enhance the lives of more than 300 million individuals globally grappling with rare diseases.
Rare Disease Day 2024: A Moment of Commemoration and Appreciation
As we approach Rare Disease Day 2024, EURORDIS is gearing up for the upcoming Black Pearl Awards. This prestigious event (visit here) pays tribute to exceptional individuals, organizations, and companies making significant contributions to the rare disease community.
Harnessing the Power of Imagery: EURORDIS Photo Award
In the spirit of these celebrations, EURORDIS has unveiled this year’s Photo Award – an international photo contest that transcends borders of nationality, age, and disease.
Why This Matters?
As a respected voice in the rare disease community, we understand the significance of such initiatives. The EURORDIS Photo Award is more than a mere competition; it is a platform to spotlight the incredible stories and experiences of those living with rare diseases. Through evocative imagery, it sheds light on the resilience, challenges, and inspiration within the LGDA community.
Your Role in Amplifying Awareness
We encourage you to take part and submit a meaningful photo of you or your loved one affected by complex lymphatic anomalies to support this meaningful contest. Sharing these stories can profoundly influence public awareness and understanding of rare diseases.
Participate and Make an Impact
Renowned photojournalist Marcus Bleasdale will curate a shortlist, which will then be open to public voting. The winners will be revealed at the EURORDIS Black Pearl Awards Ceremony on February 20th, 2024, with the top three photos receiving extraordinary prizes (details here).
How Can You Help?
Your support is invaluable. By sharing contest information and associated links/posts on your social media channels and newsletters, you contribute significantly to this noble cause. Let’s join hands to spotlight the lives and stories of those living with rare diseases. Need some inspiration? Check out previous winners.
Together, we can make a difference, one photo at a time. This is more than a contest; it’s a movement. Let’s be part of it.