Tracy Milne and her son Alfie share their story on facing the challenges of living with lymphangiomatosis head on (page 58). Later in the article
RUDY Study UK For anyone that received an invitation to join this study through the LGDA registry but haven’t quite got round to signing up,
A sequencing panel for lymphangiomatosis samples arrived today at GOSH, and the experiment will be running soon. This takes a bit of time to run
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LGD Alliance Europe is a registered charity (ANBI) in the Netherlands.
Foundation registration: 63159333
RSIN or tax nummer: 855117540
