Newsletter June 2022
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.
News from the LGDA Europe community Celebrating LGD Awareness Day 2022! LGD Awareness Day is an opportunity for the community to celebrate this special day.
Our communications team is looking for new volunteers Are you the person we are looking for? Do you have any expertise (or interest) in one
Join our cause and support us. Help us to continue supporting the patient’s community of rare lymphatic diseases in Europe. Today and in the future.
We are very pleased to introduce a brand new publication: the VASCA Magazine! A co-operation of five patient organisation in Europe representing patients with rare vascular anomalies. Download the PDF
Sirolimus has been used in a number of studies as an experimental drug for the treatment of vascular malformations. Especially for patients with lymphatic and
The VASCERN Vascular Anomalies (VASCA) Working Group has formulated a statement concerning SARS-CoV-2 vaccination for patients with vascular malformations General statement: Follow the national safety
The VASCERN (European Reference Network on Rare Multisystemic Vascular Diseases, specifically the VASCA working group) wrote a statement on Covid-10, initated by patient advocacy groups
Gorham-Stout disease (GSD) is characterized by progressive bone destruction and proliferation of lymphatic vessels. In 2016, Andrea Del Fattore, PhD, and Andrea Bartuli, MD, and their
Barclay et al published an article in the Journal Genetics in Medicine and we got permission from the author to share a link on our
As the advocacy organization for the rare vascular anomalies of GLA/lymphangiomatosis, GSD, and KLA, the LGDA is aware of the lack of resources for adults
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LGD Alliance Europe is a registered charity (ANBI) in the Netherlands.
Foundation registration: 63159333
RSIN or tax nummer: 855117540