This video explains European Reference Networks. One of those ERN’s is VASCERN. Ange van der Velden from the LGDA Europe participates as a patient representative

May 26 2017 LGDA Europe and our American partner LGDA are pleased to announce the establishment of an official Worldwide Awareness Day of May 26.

Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are

Imagine if the best specialists from across Europe could join their efforts to tackle complex or rare medical conditions that require highly specialised healthcare and

A little less than a month ago the LGDA Europe held its first meeting in Leusden, the Netherlands. A total of 11 patients and 31

Dutch hero Lazlo shared his story in 2012 on Dutch TV. Now he shares it with the world in the hope to reach out to

In February this year, Alfie’s Trust funded a 6 week Fellowship to allow Maria Gnarra to join the Dermatology Department at Great Ormond Street Hospital to