Gorham-Stout disease (GSD) is characterized by progressive bone destruction and proliferation of lymphatic vessels. In 2016, Andrea Del Fattore, PhD, and Andrea Bartuli, MD, and their
Barclay et al published an article in the Journal Genetics in Medicine and we got permission from the author to share a link on our
As the advocacy organization for the rare vascular anomalies of GLA/lymphangiomatosis, GSD, and KLA, the LGDA is aware of the lack of resources for adults
This video presents VASCERN, its members and the work that the network does to improve the lives of patients with rare vascular diseases. Subtitles now available
A team of researchers, including our ‘own’ Michael Dellinger, Juan Carlos López-Guttiérrez and Victor Martínez-Glez, have published this outstanding article on GLA, formerly known as
Francesca “FORZA FRANCY” D’Agostino and basketball team Scandone donated 1500 euro’s to the LGD Alliance Europe for support, education and research on Generalized Lymphatic Anomaly
The LGDA and partner, the Lymphatic Malformation Institute (LMI), are pleased to announce the selection for research awards for the coming year for the study
Due to the success of two previous expert clinics organized by Dr. Lopez-Gutierrez at La Paz Hospital in Madrid (Spain), more clinic dates have been
Lucia Nanetti from Italy has a son with lymphangiomatosis. She wrote the following: “According to her (the Lymphangiomatosis) you could not do sport, run, tire
Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people
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LGD Alliance Europe is a registered charity (ANBI) in the Netherlands.
Foundation registration: 63159333
RSIN or tax nummer: 855117540
