About LGD Alliance United Kingdom
Formerly known as the Alfie Milne Lymphangiomatosis Trust, the LGDA-UK works together with our national partners, the LGD Alliance Europe, to provide support and information to families affected by lymphangiomatosis (GLA), Kaposiform Lymphangiomatosis (KLA), Gorham Stout disease (GSD), and Central Conducting Lymphatic Anomaly (CCLA).
We aim to promote and support services in the United Kingdom that are of benefit to those we are seeking to help, this includes referring individuals to and making them aware of, additional groups, organisations and programmes.
Research is essential to know what causes conditions like GLA, KLA, GSD, and CCLA and to help find effective treatment. Funds raised are used to support research projects and patient support projects all over the world. We follow a formal application process to make sure we are using our supporters’ money in the best way possible.
The Board of Trustees is made up of a small group of volunteers who meet regularly to discuss where best to direct the efforts of the LGDA – UK. The charity has been a registered with the Scottish Charity Regulator (OSCR) since May 2012. The latest copies of our Annual and Financial Reports can be found below. All previous copies can be found here.
2019-20
Donations
When making a direct donation, don’t forget to Gift Aid it!
If you are making a bank transfer, sending in a cheque or using Paypal, please don’t forget that if you are a UK taxpayer, then the LGDA-UK can claim back from the government the basic rate of tax you have already paid on the money you kindly donated to us – at no cost to you. With Gift Aid, you can make these donations work harder. So, if you donated £10 we can claim a further £2.50 in Gift Aid. This is a hugely important source of income for charities and helps us make even more of a difference. If using Virgin Money to donate, then please tick the gift aid box when prompted through their website but when donating by other means, please take a few minutes to complete and return to us the Gift Aid Form (form to be updated and will be sent shortly).
Virgin Money Giving
Virgin Money Giving is a safe and secure site used by millions of donators and fundraisers. By donating through Virgin Money Giving all Gift Aid automatically comes through to the Trust.
PayPal
You can easily donate through PayPal follow the online instructions after you click on the button. Don’t forget we can claim Gift Aid on PayPal donations too.
Contact info
LGD Alliance UK,
c/o Tracy Milne,
6 North Deeside Road, Peterculter, Aberdeen, AB14 0QQ
Blog posts
Living with the challenges of lymphangiomatosis
Tracy Milne and her son Alfie share their story on facing the challenges of living with lymphangiomatosis head on (page 58). Later in the article