Register Now!
Join our insightful webinar series focused on empowering patients and their families with valuable knowledge and self-help techniques to address mental health issues and concerns.
Participants will gain a deeper understanding of the diverse nature of mental health concerns, realizing that families, patients, and caregivers have unique experiences. By recognizing these differences, attendees will be better equipped to navigate the challenges and complexities of mental health.
Together, we can create a supportive and understanding community that fosters growth and healing. Register now to secure your spot!
The webinar series is made possible through a grant from Global Genes.
Understanding the Distinctive Challenges Faced by Rare Disease Adult Patients
Thursday, September 21 at 19:00 – 20:00 pm CET
Speaker: Dr. Kathleen Bogart
Join us for an enlightening and empowering webinar that delves into the distinctive challenges faced by rare disease adult patients. We understand that the journey can be tough, but you are not alone.
Living with a rare disease as an adult comes with a set of hurdles that can feel overwhelming at times. In this webinar, we will explore the unique challenges faced by adult patients and equip you with valuable techniques for self-care and empowerment.
Who should attend:
- Adult patients
- Caregivers and loved ones of adult patients
- Healthcare professionals seeking insights into the unique challenges faced by adult patients
Strengthening Relationships and Empowering Children: Navigating the Unique Challenges Faced by Rare Disease Families
Thursday, October 5 at 19:00 – 20:00 pm CET
Speaker: Dr. Albert Freedman
Living with a rare disease can be an arduous journey, not only for the affected individuals but also for their families. There is an immense emotional toll that rare diseases can have on families. It starts on finding and receiving a rare disease diagnosis which can be overwhelming. However, the journey doesn’t end with a diagnosis; it continues with treatment, each step posing new challenges for families.
In this webinar, we will explore the unique mental health needs of families, and how to foster a compassionate and understanding family environment to find strength, hope, and resilience.
Who should attend:
- Patients
- Family members of a rare disease patient
- Healthcare professionals seeking insights into the unique challenges faced by adult patients
Meet the Speakers
Learn more about Dr. Freedman:
https://www.freedmancounseling.com/
https://www.rarecounseling.com/
Learn more about Dr. Bogart
https://liberalarts.oregonstate.edu/sps/dsil
https://www.psychologytoday.com/us/blog/disability-is-diversity
