These are our three main goals to provide each and every one of you with the help, the knowledge and the strength to deal with Rare and Complex Lymphatic Anomalies.
What is a Rare Lymphatic Anomaly?
Because these rare diseases can affect different parts of the body, symptoms can vary depending on which body areas are affected.
Lymphatic malformations often occur in the skin and soft tissue. They contain lymphatic fluid and are seen as a “mass” or cyst.
When the draining of lymphatic fluid does not occur properly, a more generalized swelling occurs.
Who we are
The LGD Alliance Europe is the European organisation for patients with Rare and Complex Lymphatic Anomalies. We want to connect patients, family, clinicians and researchers affected by and dedicated to these rare diseases in Europe.
What we do
Our mission is to provide support, education and hope to patients and families affected by Rare and Complex Lymphatic Anomalies.
How you can help
You can help by getting involved in many ways like:
Support us and our work – also in the future. You can support us with an annual donation of minimal 25 euro or give a single donation.
Help us as help patients and become a volunteer. Write for our newsletter, help with translations or give a lecture at school to raise awareness.
Selling cookies, racing cars or swim all night: every fundraiser that will raise money and awareness for Lymphatic Anomalies, is great!
How easy can it be? You do your online shopping, pay nothing extra and a percentage of your spendings will go to the LGDA.
Are you a patient?
As a patient you can help in other ways as well:
Register as a patient in our medical registry. That way you can support scientific studies into Rare and Complex Lymphatic Anomalies.
You can raise more awareness by sharing your story online, in our closed online forum, in our newsletter or on our website. Use #LGDAwareness on Twitter and Instagram.
Use our brochures to spread awareness about Rare and Complex Lymphatic Anomalies. Don’t hesitate to show it to your health care professional.
We are very pleased to introduce a brand new publication: the VASCA Magazine! A co-operation of five patient organisation in Europe representing patients with rare vascular anomalies. Download the PDF